Silcworm
Satisfaction In Life for Children With Own Report Measures
The treatment of children who are exposed to on-going medical monitoring and treatment should be assessed in a thorough, but enjoyable, manner. Quality of life is one such measure which can assess medical care. Currently there is no online child friendly measure to assess quality of life in children. We hope that e-SILCWORM will help medical and other allied health professionals to understand more about the effect of long term medical treatment for young children and contribute towards better care.
We are now studying children with and without medical conditions. If your child's condition is not listed please enter it in the free text box. If you wish to try the game yourself please select 'Test' from the condition box. We are hoping to study around 1000 child patients aged 4-10.
We hope that children and their families enjoy taking part, as have families in similar projects in the past. The data obtained in this research project will be handled with complete privacy and access to research records shall be limited to the research team. The project has ethics approval from University College London (UCL).
If you have further questions and/or worries, please email silcworm@ucl.ac.uk.
Thank you for considering taking part in this study.